A few weeks ago, I attended a KidneyWorks™ stakeholder meeting hosted by Medical Education Institute (MEI) and the American Association of Kidney Patients (AAKP) in Washington D.C. MEI is partnering with AAKP on KidneyWorks™ to focus on addressing the lack of employment among people with later stages of CKD.
KidneyWorks™ is a long-term comprehensive initiative to:
- Investigate barriers to continued employment for people with non-dialysis CKD
- Identify strategies to help working age people with CKD slow the disease progression and keep their jobs
- Develop resources and programs to support people with CKD in the workforce
The focus of the recent meeting was to understand the current state of CKD patient employment, and identify challenges and data gaps from the multiple stakeholder perspectives on the issue. Consensus was reached on goals, strategies, and tactics that could be applied to improve job retention among people with late stage (non-dialysis) CKD. The product of the meeting will be the creation of a white paper that fully describes the issue and identifies both strategies to implement and constituent groups to involve, all of which will be necessary to achieve KidneyWorks™ goals.
AAKP & MEI host KidneyWorks meeting, a joint collaboration on patient employment at the Hall of States in D.C. pic.twitter.com/jXguYjYHhI
— AAKP (@KidneyPatients) June 29, 2016
Attending the meeting was a cross-disciplinary panel of experts from the fields of vocational rehabilitation, nephrology social work, and health policy development, nephrology clinicians, leaders from various Dialysis Organizations (LDOs and SDOs), and representatives from the Centers for Medicare and Medicaid (CMS), the Department of Labor (DOL), Health and Human Services (HHS IDEALab), American Health Quality Association (AHRQ), and two CKD patients who are leaders within the AAKP organization and work on behalf of AAKP as Washington lobbyists.
Our company works with TPAs, Multi-Employer Groups and Employers to identify those with undiagnosed CKD. Renalogic’s team of nurse coaches are advocates for both undiagnosed and diagnosed members, who in turn empower participants of the program to understand and control their disease(s).
This meeting clearly demonstrated the need to raise awareness of chronic kidney disease and the need to advocate for programs similar to these in the renal community. Renalogic stands behind and applauds this effort, and looks forward to assisting in this issue.